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Finding The New Normal After A Chronic Illness Diagnosis

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Tag: depression

Hello, From My Dark Place

September 23, 2018September 24, 2018 jaharris91

My struggle with depression in the midst of a life changing due to lupus

Tagged autoimmune disease, chronic illness, coping, depression, systemic lupus erythematosus2 Comments

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So many big life changes in the works that I can’t wait to share, and then there’s this...the constant, and the thing that everything has to be scheduled around. These days have become oddly comforting, is that weird??

Today marks two years of monthly benlysta infusions (bringing my total to 26 benlysta infusions)! So wild to think about.

Need I say more? 🤔

When the makeup is so good it makes you look alive again 🤷🏽‍♀️🤣

Does anyone else have hair growth problems?! If so, what has worked for you to get it to grow!

There are so many little physical reminders, in my day, of this disease that take a toll on the psyche aside from the constant aches and pains (that’ll do it too). Little things like the visual reminder of every infusion and hospital stay on both of my hands and up both arms (it’s safe to say my hand modeling aspirations will never be realized 😜). Little things like the scar on my back from a spinal tap a few years ago, the marks/‘dimples’/discoloration on my right butt cheek from injections of this or that, and the weight gain that came with chemo. Little things like not being able to get out a full sentence without gasping for air when my serositis kicks up or not being able to put words together to form a sentence and the other parties in the conversation staring at me like I’m growing a second head. These are all things that may or may not be noticeable to the people around me at any given time, but so glaringly obvious and noticeable to me.

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